So you’re raising kids and a full-time caregiver. Welcome to the club. Feeling like you just signed your life away? Just when the kids are getting older and time is more flexible, here you are right back in the thick of it.
Parenting is hard.
Caregiving is hard.
Doing both at the same time has become a new norm.
Your parent got old!
Now you’re back under one roof.
Holy crap how did that happen?
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Don’t forget. In the spirit of Pardon Me, My Crown Slipped, I am not pulling punches. No sugar-coating.
ALLOW EVERYONE TIME TO ADJUST FOR CHANGE
Realize that there’s a learning curve.
Some family members might take to the new situation easily.
Maybe not everyone will like the changes.
Fear, anger, and resentment could come from anywhere.
Even if this was a decision that everyone agreed on and knows is necessary.
Even if everyone got along well before.
Living together changes things.
There is joy to be found, but sometimes it needs to be arrived at after a period of adjustment.
It might be the kids who don’t want to live somewhere new or with someone old.
They go to sleep early.
They are often cranky.
Frankly, sometimes they smell.
They like to pinch your cheeks.
I meant the old people, but that sounds like kids too.
Your spouse is wondering where he fits in.
It’s tough enough to get some nookie without the kids walking in, now it’s your elderly mother in the next room.
So not sexy.
At least she takes her hearing aids out at night, right?
Maybe your parent (or grandparent) doesn’t want a bunch of kids running around.
Kids are loud, they have lots of stuff and friends and lives.
Elderly people want quiet and simple.
And cookies, well at least everyone likes those.
Ooh, how about a special batch of brownies so we can all just get along.
On second thought, probably not a good idea.
What about you?
What if you’re doing it because it’s the right thing, but not because you really want to?
Not everyone gets to take care of Betty White.
Cranky Aunt Edna from National Lampoon’s Vacation is funny on-screen, but in real life, you can’t actually put her on the roof of the family truckster.
They might need more time and understanding – that includes you.
People will be sad.
People will be angry.
Chances are they will take it out on you.
Unfortunately, change may be constant.
Just like keeping up with children growing from stage to stage, you are also keeping up with the declining stages of your parent.
It could be fast or slow.
Of course not, and it won’t.
Get used to it.
LEARN, LEARN, LEARN
Your kids may be the ones getting an education, but everyone can learn more every day.
Find out everything you can about your loved one’s health issues.
Taking care of someone who has cancer is going to be different than someone who has Alzheimer’s.
All of it will suck.
It will help to know in what way.
Don’t go too fast.
Read a quick overview of their illness, but only go in-depth into the phase they are in now.
It helps to have an awareness of what may happen next and down the road but you can easily become overwhelmed if you devour it all right away.
Digest in small bites for your own well-being.
You can learn more later as things happen or as you are ready to absorb more.
MAKE IT A FAMILY AFFAIR – GET CREATIVE
We homeschool which is a perfect fit.
Even if you don’t, the time is ripe to teach compassion, adaptability, responsibility, and teamwork.
Kids can help with laundry, yard work, cooking, and many other household chores.
This helps free up your time, but also teaches valuable life skills and lessons can be part of their homeschool curriculum or just life as you know it.
Elders can help with school too.
Helping kids with math problems by playing games or quizzing them with flashcards can make them feel useful.
Kids or elders can recite poetry, put on plays, read books, listen to music, and sing songs.
Interviewing older people can offer lessons in historical events or just a recording of family history.
Old photographs, home movies, and newspapers give rich memory activities for everyone.
Kids get to see how grandma looked when she was young, smiling and active instead of only remembering her sick and old.
It is a good lesson in humility.
That goes for you too, how do you want to be remembered?
The cranky bitter bitch who grumbles all day?
Or as someone who can find compassion in the face of heartache.
Many elders really do want to help.
Maybe they can fold clothes or peel the potatoes.
Sometimes they can’t or won’t for whatever reason.
Boy, do I understand.
Like with kids, it can be easier to just do it yourself to avoid problems.
In this house, we have senior hygiene issues associated with dementia.
It might take effort but you can find ways to have them join in.
Apparently, I did not learn my lessons in patience with kids, I am going to keep repeating the lessons with grandma until I do. Sigh….
Spouses can offer a change of scenery.
For you. For the kids. For the senior.
Getting you out of the house for a date night or just a walk in the evening can make a world of difference. It’s surprising how just a short time away can give you a boost to keep going.
As any stay-at-home mom knows, getting the kids out of your hair is great.
When you have full-time caregiving of an elderly person on top of that, it’s like a godsend.
If it’s physically possible they could take the senior off your hands for a while.
Or, oh my god – all of them at once.
ASK FOR HELP
Run. Don’t walk.
Find every possible service you qualify for.
Find every possible person who could help you.
Big ways or small, doesn’t matter.
Make a list.
Now, before you need it.
Because you will.
I’ll tell you straight out.
I didn’t do this and still haven’t.
That. Is. Why. I .Am. So. Miserable!
Yes, you heard me right.
I have made every excuse I can come up with about why I don’t have help.
- My grandma won’t like it.
- My family doesn’t help enough.
- We don’t qualify for any services covered by insurance.
- My grandmother won’t pay for outside services she can afford.
Whether they are true or not is irrelevant.
If I had set this up in the beginning, everyone would be used to it and onboard.
Now my grandmother is so used to it she has anxiety if I am not here.
So now I have another excuse.
Fear of conflict.
I don’t like to rock the boat.
I was so hesitant to make waves at the beginning that I took it all on. It started about 5 years ago just during the day.
Two years ago we merged households and it became round the clock.
Here we are still doing it all.
She has two children, three step-children, and seven grandchildren as well as four nieces.
Yet, we are it.
Most of them don’t call or visit….ever.
If you’ve never heard of the 80/20 rule, it means in any group 20 % of the people will do 80% of the work.
Apparently, our group is operating under the 99/10 rule.
Maybe they think I am Wonder Woman.
Maybe I am. (wink).
I really wish I was Samantha from Bewitched.
Then it would be a simple(nose twitch).
Come on, if you grew up in the 70’s you are lying if you never wished that.
If you don’t know who that is, watch YouTube.
Darrin sucks though. Like I would cook and clean if I could twitch it done instead. Just no.
What guy do you know who would go to work instead of getting you to twitch more beer and shit?
But I digress…..
I wasn’t overwhelmed at the beginning.
It was easy to assume family would jump in and help.
Often family members need to be shoved.
Over a cliff. Just kidding. Sort of.
Problem is, I’m not much of a shover.
More of a hinter. (I don’t think that’s a word).
Umm, guess what?
Hinting doesn’t work.
So ask. Ask early. Ask often. Keep asking.
Online caregiver forums, groups, and blogs, like this one 🙂 can make an impossible situation manageable.
Talking it over with others going through the same thing can make you feel less alone.
Professional help to discuss everyone’s needs and mediate conflicts may be necessary.
Most insurances can at least offer an assessment from a social worker.
That may be the best place to start at the beginning before any problems arise.
Be proactive, instead of reactive.
STAY SOFT AND STAY STRONG
You need you.
They need you.
No one will benefit if you can’t stay healthy.
Find ways to take care of yourself.
All those lame lists that tell you to take a walk, take a bath, call a friend.
Sometimes it’s all you’ve got.
Take it. I like to read.
If that’s you, find a way to get lost in a book.
Whatever it is for you do it.
Find a way.
Don’t lose yourself.
Don’t become bitter.
Go easy on yourself.
You will probably get criticized by someone else.
You will definitely criticize yourself.
Realize you will make mistakes.
Big and small, just like parenting.
No one is perfect.
There will be second-guessing and guilt. It’s like mommy guilt, but now there’s more from someone who might be able to sling it better.
With kids, they are growing up and out.
With seniors, it is someone who used to have things like hobbies and friends.
Health and memories.
But they’re losing them.
Even so, we can’t be everyone’s everything.
FOR EVERYTHING THERE IS A SEASON
Kids grow up and leave home.
Caregiving isn’t forever either.
It’s the sad truth.
No one knows.
Maybe that’s what makes it hard.
With kids, you have a general idea of what stages you’ll progress through and when.
Caregiving can be wildly unpredictable.
My friend moved in with her 95-year-old mother thinking she would care for her for 6 months.
It was 6 years before she died, that’s 101 people!
They are two of the nicest people I’ve ever known.
It was a great experience for both.
Sure it helps my friend is a nurse and her mom was sweet, but 6 years is still a long time.
Now she’s caring for her boyfriend with cancer.
You just never know.
And there’s the crux of it.
We don’t know.
We’ll never know it all.
You will pass each hurdle, whether over, under, or around, you will make it.
Life will move forward.
Now I want to hear from you. What’s the biggest challenge you face?
Monday 24th of October 2016
Will call,I don't get out much either,he has become so dependent and he was never like that I have a small part time job takeing care of a lady in Westminster Mon,Tues,Thurs.8till 12noonit gets me out she a hot ticket & we help each other
Saturday 22nd of October 2016
Thank you Laurie, I always felt that we were kindred spirits great minds think alike.I don't know If this is blogging or not,but it's helping me cope.takeing care of Jim is so different than my mother maybe because he's with it but I'm feeling anticipatory grief.it helps me to read different books on the subject and to share with people going through the same think he doesn't say much but I know I have to listen to him when he wants to speak about it when I would rather hide my head in the sand, tonight he said Tijeanne,and the way he said my name I knew what he was going to ask me without a doubt sure enough he said how do people die from this particular cancer I said I really don't know,I know that they have a greater capacity these days to keep people comfortable he said o k,I don't want to talk about it anymore and I thought whew!!! It took all I had not to say please don't talk about that,it takes a lot of guts (for lack of a better word) to not think of your own fear,about it,and let them express their feelings when you want to scream YOUR NOT GOING ANYWHERE,YOU CAN'T LEAVE ME,SO STOP IT AND KEEP FIGHTING that felt good to write that down, I need to pray more for guideance,and offer prayers for others who are caretakers were all in it together
Sunday 23rd of October 2016
So sorry to hear how hard this is for you and for Jimmy. It really does help to talk and write about it. I recently joined a few facebook caregiver support groups. I haven't done any talking yet, just reading. Though the ones I joined are specific to dementia and yours would be different, I do find that reading what they say sounds just like what I go through. I feel bad for them, but I do find comfort knowing that there are similarities not only with the ones we are caring for, but amongst the care givers feelings too. Anger, fear, resentment and sadness....and of course soooo much guilt for those feelings. I really don't leave the house much to be honest, and don't know how much you can leave Jimmy, but you can come by or call me anytime. (I also changed the name of my site to be more reflective of what it's all about, so the email might look different too:)
Monday 10th of October 2016
I can say I have no regrets it was the most rewarding job ever (well done faithful servant I am well pleased) I remember holding her warm hand at night in bed trying to hold on to that warmth that feeing knowing someday that hand would be cold.I remember her blessing a week before she died when she was to weak to speak only wispre she said out loud"your doing a great job,you'll be just fine,thank you and I love you"or when I held her in my arms we were both breathing as one and then it was just my breath or when I went out on the deck and looked up at the stars the other night and said ma I need your help with Jim and a shooting star streaked across the sky all good
Tuesday 11th of October 2016
Tijeanne, your compassion inspires me everyday. Love you.
Monday 10th of October 2016
All so true,Laurie I remember when I was careing for mom,people would encourage me to take a vacation,but I always had an awful feeling like when you go to dinner for the first time after having a baby and call the babysitter 150 times ,I did go away once overnight 2nights felt awful and she lived five years after that,or getting a sitter and going back to your own home and taking a hike with partner only to come home and see a message blinking on your phone and flipping out and it wasn't even About her.I used to say when their haveing a bad day it's like losing your pocketbook( oh!!!no!!!what did I do with it, what will happen now,,what about my credit cards? Who do I call then they get better and you say whew!i found my pocketbook thank God!,such a roller coaster one other thing to add just because you are careing for someone the world doesn't stop around you someone is still going to cut you off in traffic their not going to say oh I better not cut her off she's careing for someone such is life
Tuesday 11th of October 2016
I know. People don't understand how hard it is. "but she just sleeps so much, how can you be stressed". Well, I can't leave, and not knowing how she'll be or feel when she's awake is stressful. She was up at 1 am the other night, fully dressed and trying to pack for a plane trip! So far though that's the only time like that.